Bereaved donor families' experiences of organ and tissue donation, and perceived influences on their decision making

2.50
Hdl Handle:
http://hdl.handle.net/2436/621083
Title:
Bereaved donor families' experiences of organ and tissue donation, and perceived influences on their decision making
Authors:
Sque, Magi ( 0000-0003-3973-7328 ) ; Walker, Wendy ( 0000-0003-2487-4725 ) ; Long-Sutehall, Tracy ( 0000-0002-6661-9215 ) ; Morgan, Myfanwy; Randhawa, Gurch; Rodney, Amanda
Abstract:
Purpose To elicit bereaved families' experiences of organ and tissue donation. A specific objective was to determine families' perceptions of how their experiences influenced donation decision-making. Methods Retrospective, qualitative interviews were undertaken with 43 participants of 31 donor families to generate rich, informative data. Participant recruitment was via 10 National Health Service Trusts, representative of five regional organ donation services in the UK. Twelve families agreed to DBD, 18 agreed to DCD, 1 unknown. Participants' responses were contextualised using a temporal framework of ‘The Past’, which represented families' prior knowledge, experience, attitudes, beliefs, and intentions toward organ donation; ‘The Present’, which incorporated the moment in time when families experienced the potential for donation; and ‘The Future’, which corresponded to expectations and outcomes arising from the donation decision. Results Temporally interwoven experiences appeared to influence families' decisions to donate the organs of their deceased relative for transplantation. Conclusions The influence of temporality on donation-decision making is worthy of consideration in the planning of future education, policy, practice, and research for improved rates of family consent to donation.
Citation:
Bereaved donor families' experiences of organ and tissue donation, and perceived influences on their decision making 2018, 45:82 Journal of Critical Care
Journal:
Journal of Critical Care
Issue Date:
Jun-2018
URI:
http://hdl.handle.net/2436/621083
DOI:
10.1016/j.jcrc.2018.01.002
Additional Links:
http://linkinghub.elsevier.com/retrieve/pii/S0883944117311929
Type:
Article
Language:
en
ISSN:
0883-9441
Appears in Collections:
FEHW

Full metadata record

DC FieldValue Language
dc.contributor.authorSque, Magien
dc.contributor.authorWalker, Wendyen
dc.contributor.authorLong-Sutehall, Tracyen
dc.contributor.authorMorgan, Myfanwyen
dc.contributor.authorRandhawa, Gurchen
dc.contributor.authorRodney, Amandaen
dc.date.accessioned2018-02-07T14:50:45Z-
dc.date.available2018-02-07T14:50:45Z-
dc.date.issued2018-06-
dc.identifier.citationBereaved donor families' experiences of organ and tissue donation, and perceived influences on their decision making 2018, 45:82 Journal of Critical Careen
dc.identifier.issn0883-9441en
dc.identifier.doi10.1016/j.jcrc.2018.01.002-
dc.identifier.urihttp://hdl.handle.net/2436/621083-
dc.description.abstractPurpose To elicit bereaved families' experiences of organ and tissue donation. A specific objective was to determine families' perceptions of how their experiences influenced donation decision-making. Methods Retrospective, qualitative interviews were undertaken with 43 participants of 31 donor families to generate rich, informative data. Participant recruitment was via 10 National Health Service Trusts, representative of five regional organ donation services in the UK. Twelve families agreed to DBD, 18 agreed to DCD, 1 unknown. Participants' responses were contextualised using a temporal framework of ‘The Past’, which represented families' prior knowledge, experience, attitudes, beliefs, and intentions toward organ donation; ‘The Present’, which incorporated the moment in time when families experienced the potential for donation; and ‘The Future’, which corresponded to expectations and outcomes arising from the donation decision. Results Temporally interwoven experiences appeared to influence families' decisions to donate the organs of their deceased relative for transplantation. Conclusions The influence of temporality on donation-decision making is worthy of consideration in the planning of future education, policy, practice, and research for improved rates of family consent to donation.en
dc.language.isoenen
dc.relation.urlhttp://linkinghub.elsevier.com/retrieve/pii/S0883944117311929en
dc.rightsArchived with thanks to Journal of Critical Careen
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/*
dc.subjectDeceased organ donationen
dc.subjectFamilyen
dc.subjectBereavementen
dc.subjectDecision-makingen
dc.subjectConsenten
dc.subjectQualitativeen
dc.titleBereaved donor families' experiences of organ and tissue donation, and perceived influences on their decision makingen
dc.typeArticleen
dc.identifier.journalJournal of Critical Careen
dc.date.accepted2018-01-02-
rioxxterms.funderinternalen
rioxxterms.identifier.projectUOW070218MSen
rioxxterms.versionAMen
rioxxterms.licenseref.urihttps://creativecommons.org/licenses/by-nc-nd/4.0/en
rioxxterms.licenseref.startdate2019-01-16en
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