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Developing an intervention to implement electronic patient-reported outcomes in renal services in the UK
van der Veer, SN Ercia, A Caskey, FJ Farrington, K Jury, F Rees, M Whitlock, T Knowles, S
van der Veer, SN
Ercia, A
Caskey, FJ
Farrington, K
Jury, F
Rees, M
Whitlock, T
Knowles, S
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Epub Date
Issue Date
2020-03-10
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SHTI-270-SHTI200299.pdf
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Abstract
Routinely collecting and using electronic patient-reported outcome (ePRO) data in clinical practice can improve patients' experience and outcomes, but implementing this at scale has proved challenging. As part of the Optimising routine collection of electronic patient-reported outcomes (OPT-ePRO) study, we therefore developed an intervention that aimed to facilitate the implementation of ePROs. We are conducting OPT-ePRO in the context of secondary care for people with chronic kidney disease in the UK, with three renal units participating as our study sites. Intervention design was guided by Normalisation Process Theory, and informed by published literature and qualitative research. The intervention consisted of a national infrastructure to securely collect, transfer and display ePRO data, complemented with materials and procedures to support kidney patients and renal unit staff with embedding ePROs in usual care pathways. The next step will be to bring the OPT-ePRO intervention into practice and iteratively refine it.
Citation
Van de Veer, S., Ercia, A., Caskey, F.J. et al. (2020) Developing an intervention to implement electronic patient-reported outcomes in renal services in the UK, in Pape-Haugaard, L.B., Lovis, C., Cort Madsen, I., Weber, P., Nielsen, P.H. and Scott, P. (eds.) Digital Personalized Health and Medicine: Proceedings of MIE 2020. Amsterdam: IOS Press.
Publisher
Journal
Research Unit
PubMed ID
32570519 (pubmed)
PubMed Central ID
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Conference contribution
Language
en
Description
© 2020 The Authors. Published by IOS Press. This is an open access chapter available under a Creative Commons licence.
The published version can be accessed at the following link on the publisher’s website: http://ebooks.iospress.nl/publication/54301
Series/Report no.
Studies in Health Technology and Informatics 270
ISSN
1879-8365
EISSN
ISBN
9781643680828