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What is needed to obtain informed consent and monitor capacity for a successful study involving people with mild dementia? Our experience in a multi-centre study
Lim, Jennifer Almeida, Rosa Holthoff-Detto, Vjera Ludden, Geke Smith, Tina Niedderer, Kristina the MinD consortium
Lim, Jennifer
Almeida, Rosa
Holthoff-Detto, Vjera
Ludden, Geke
Smith, Tina
Niedderer, Kristina
the MinD consortium
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2019-11-13
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Abstract
Strategies on informed consent process and capacity monitoring for mild dementia research are at developing state. We reflected on our experience and found that the successful collection of informed consent and full participation of PwD required the involvement of familiar healthcare professionals/care workers/staff at the recruitment and data collection stages and this needs to occur in an active support environment. Time is another important factor affecting the success of the study.
Citation
Lim, J., Rosa, A., Holthoff-Detto, V., Ludden, G., Smith, T., Niedderer, K. and MinD consortium (2019) What is needed to obtain informed consent and monitor capacity for a successful study involving People with Mild Dementia? Our experience in a multi-centre study, In Niedderer, K., Ludden, G.D.S., Cain, R. and Wölfel, C. (eds.) Designing with and for people with dementia: wellbeing, empowerment and happiness. Dresden : TUDpress, 2019, pp. 139-150.
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Conference contribution
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en
Description
This chapter originally appeared as a paper at the International MinD Conference 2019 http://designingfordementia.eu/news/mind-events/mind-conference-2019
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9783959081832