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The role of life context and self-defined well-being in the outcomes that matter to people with a diagnosis of schizophrenia
Lloyd, Helen ; Lloyd, Joanne ; Fitzpatrick, Ray ; Peters, Michele
Lloyd, Helen
Lloyd, Joanne
Fitzpatrick, Ray
Peters, Michele
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2017-04-03
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Abstract
Objective Conduct a deep exploration of the outcomes that matter to people with a diagnosis of schizophrenia and understand from their perspective how these outcomes can be achieved. Sample and Methods In-depth qualitative interviews were conducted with 22 people with a diagnosis of schizophrenia. Interviews were analysed using thematic frameworks, and a realist informed theories of change approach. Results Our study revealed the potential causal relationships between the context of a person's life, short-term goals and long-term outcomes. We provide a nuanced and detailed exploration of outcomes that matter for people with schizophrenia in relation to self-defined well-being. Achieving life milestones, feeling safe and outcomes related to improved physical health along with employment, a positive sense of self and psychosocial outcomes, were highly valued. For short- and long-term outcomes to be achieved, individuals required medication with minimal side-effects, cognitive behavioural therapy, family/social support and meaningful activities in their lives. Well-being was influenced by life context and short- and long-term outcomes, but in a circular nature also framed what short-term goals could be achieved. Conclusions Working with people with a diagnosis of schizophrenia to identify and achieve better outcomes will necessitate a person-centred approach. This will require an appreciation of the relationship between the statutory and non-statutory resources that are available and a consideration of an individual's current well-being status. This approach acknowledges personal strengths and encourages ownership of goals and supports self-management.
Citation
Lloyd, H., Lloyd, J., Fitzpatrick, R., Peters, M. 'The role of life context and self-defined well-being in the outcomes that matter to people with a diagnosis of schizophrenia', Health Expectations, 20 (5) pp. 1061-1072. doi: 10.1111/hex.12548
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Journal article
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en
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1369-6513
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EUFAMI