Quality of life measurements from the patient perspective: capturing the heterogeneity of the patient experience in a standardised way
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Abstract
For patients, quality of life is the confluence and interaction of multiple factors related to both the disease and to how life is lived with and beyond the disease. When tasked with completing a quality-of-life questionnaire, patients may well wonder for whose benefit this is, which really needs to be made clear. We discuss some of the issues around quality-of-life questionnaires and the challenge of the heterogeneity of the patient experience. Patient summary: This mini-review discusses quality-of-life measurements from the patient perspective and the need to take account of the patient's life and not just the disease.Citation
Matheson, D., Abdel-Aty, H. and O'Shea, L. (2023) Quality of life measurements from the patient perspective: capturing the heterogeneity of the patient experience in a standardised way. European Urology Focus. DOI:https://doi.org/10.1016/j.euf.2023.03.013Publisher
ElsevierJournal
European Urology FocusPubMed ID
37028986 (pubmed)Type
Journal articleLanguage
enDescription
© 2023 The Authors. Published by Elsevier. This is an open access article available under a Creative Commons licence. The published version can be accessed at the following link on the publisher’s website: https://doi.org/10.1016/j.euf.2023.03.013ISSN
2405-4569EISSN
2405-4569Scopus Count
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Except where otherwise noted, this item's license is described as https://creativecommons.org/licenses/by-nc-nd/4.0/