Inflammatory bowel disease patient‐reported quality assessment should drive service improvement: A national survey of UK IBD units and patients
Authors
Hawthorne, A BarneyGlatter, Jackie
Blackwell, Jonathan
Ainley, Rachel
Arnott, Ian
Barrett, Kevin J
Bell, Graham
Brookes, Matthew

Fletcher, Melissa
Muhammed, Rafeeq
Nevill, Alan M.

Segal, Jonathan
Selinger, Christian P
St. Clair Jones, Anja
Younge, Lisa
IBD UK Board
IBD UK Task & Finish Group
Issue Date
2022-06-01
Metadata
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Background & Aims Healthcare service provision in inflammatory bowel disease (IBD) is often designed to meet targets set by healthcare providers rather than those of patients. It is unclear whether this meets the needs of patients, as assessed by patients themselves. This nationwide study assessed patients' experience of IBD and the healthcare they received, aiming to identify factors in IBD healthcare provision associated with perceived high-quality care. Methods Using the 2019 IBD Standards as a framework, a national benchmarking tool for quality assessment in IBD was developed by IBD UK, comprising a Patient Survey and Service Self-Assessment. Results In all, 134 IBD services and 9757 patients responded. Perceived quality of care was lowest in young adults then increased with age, was higher in males and those >2 years since diagnosis. No hospital services met all the National IBD Standards for recommended workforce numbers. Key metrics associated with patient-reported high-quality care were as follows: identification as a tertiary centre, patient information availability, shared decision-making, rapid response to contact for advice, access to urgent review, joint medical/surgical clinics and access to research (all p < 0.001). Higher numbers of IBD nurse specialists in a service was strongly associated with patients receiving regular reviews and having confidence in self-management and reporting high-quality care. Conclusions This extensive patient and healthcare provider survey emphasises the importance of aspects of care less often measured by clinicians, such as communication, shared decision-making and provision of information, and demonstrates that IBD nurse specialists are crucial to meeting the needs of people living with IBD.Citation
Hawthorne, A.B., Glatter, J., Blackwell, J. et al. (2022) Inflammatory bowel disease patient‐reported quality assessment should drive service improvement: A national survey of UK IBD units and patients. Alimentary Pharmacology & Therapeutics. https://doi.org/10.1111/apt.17042Publisher
WileyJournal
Alimentary Pharmacology & TherapeuticsType
Journal articleLanguage
enDescription
© 2022 The Authors. Published by Wiley. This is an open access article available under a Creative Commons licence. The published version can be accessed at the following link on the publisher’s website: https://doi.org/10.1111/apt.17042ISSN
0269-2813EISSN
1365-2036Sponsors
This work was supported by Crohn's & Colitis UK.ae974a485f413a2113503eed53cd6c53
10.1111/apt.17042
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Except where otherwise noted, this item's license is described as https://creativecommons.org/licenses/by-nc/4.0/