Assessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the MinD project in Europe
Authors
Lim, Jennifer NWNiedderer, Kristina
Tournier, Isabelle
Almeida, Rosa
Harrison, Dew
Holthoff-Detto, Vjera
Ludden, Geke
van Rompay, Thomas
van der Voort, Mascha
Galansinska, Aleksandra
Smith, Tina
Lasada, Raquel L
Bueno, Yolanda A
Druschke, Diana
Ziebuhr, Berit
Zanasi, Michele
Issue Date
2021-11-10
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Background: Generalisation of findings is an important aspect of research and essential for evidence-based practice. While generalisation is common in quantitative research, there is a lack of generalisability in qualitative research. This paper presents the experience and challenges faced by the Designing for People with Dementia (MinD) project in meeting the requirements to strengthen the generalisation of findings on the lived experience of people living with dementia and their engagement to co-create designs to empower their everyday living. Methods: Polit and Beck (2010)’s strategies to generalise qualitative findings were applied: (1) replication in sampling; (2) replication of studies; (3) meta-synthesis of findings; (4) reflexivity and conceptualization; (5) immersion with the data; and (6) thick description. Results: While it is possible to increase the generabilisabilty of qualitative evidence through the replication of the sampling to attain a large, heterogeneous sample in different and multiple contexts and environments; implementation of sound and robust research; conducting in-depth analysis and interpretation collaboratively for emergent themes; and meeting the thick description requirement, there are challenges that the project team faced in implementing some of the Polit and Beck’s strategies because of the condition, namely dementia, that our participants are having. Other challenges faced were: the language and cultural diversity in the team; diverse work and organisational procedures; and the inter-disciplinary differences relating to the methods of enquiry, approaches and techniques to conduct research. These challenges will need to be identified and addressed at the start of the project with a strong leadership to ensure a seamless journey to complete the project successfully. Trust between the researchers and participants, and time to build this trust are critical to recruitment and participation in the study; these factors are of utmost important in research involving participants with condition such as dementia.Citation
Lim, J.N.W., Niedderer, K., Tournier, I. et al. (2021) Assessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the MinD project in Europe [version 3; peer review: 2 approved] Open Research Europe 2021, 1:64 https://doi.org/10.12688/openreseurope.13700.3Publisher
F1000 ResearchJournal
Open Research EuropeAdditional Links
https://open-research-europe.ec.europa.eu/articles/1-64Type
Journal articleLanguage
enDescription
© 2021 The Authors. Published by F1000 Research. This is an open access article available under a Creative Commons licence. The published version can be accessed at the following link on the publisher’s website: https://doi.org/10.12688/openreseurope.13700.3ISSN
2732-5121EISSN
2732-5121Sponsors
This research was financially supported by the European Union’s Horizon 2020 research and innovation programme under the Marie Skłodowska-Curie grant agreement No 691001 (Designing for People with Dementia' [MinD]).ae974a485f413a2113503eed53cd6c53
10.12688/openreseurope.13700.3
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Except where otherwise noted, this item's license is described as https://creativecommons.org/licenses/by/4.0/