The voices of people with an intellectual disability and a carer about orthopaedic and trauma hospital care in the UK: An interpretative phenomenological study
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AbstractIntroduction People with intellectual disabilities (PWID) have a greater prevalence ofmusculoskeletal conditions and injuries than the general population. Orthopaedic andtrauma hospital care has not been investigated with this group who seldom have theirvoices heard or their experiences valued and interpreted. Aim To understand theorthopaedic and trauma hospital experiences from the perspective of PWID. Methods A qualitative approach, focusing on peoples’ lived experiences, was utilised. Apurposive sample of five participants was recruited and one-to-one, semi-structuredinterviews were undertaken. Analysis of the interviews employed an interpretative phenomenological analytical framework. Findings There were communicationchallenges, a lack of person-centred care, issues with pain management, a lack ofconfidence in hospital care, valuable support and expertise of carers, incompetence ofhospital staff and isolation and loneliness. Discussion and conclusions There weresignificant shortcomings as PWID and a carer perceived they were unsupported andreceived poor care. Recommendations for practice: Person-centred care is neededalong with specific education and training, including close liaison with the experts byexperience – PWID, their carers as well as the specialists in intellectual disability.
CitationDrozd, M., Chadwick, D. and Jester, R. (2020) The voices of people with an intellectual disability and a carer about orthopaedic and trauma hospital care in the UK: An interpretative phenomenological study, International Journal of Orthopaedic and Trauma Nursing. https://doi.org/10.1016/j.ijotn.2020.100831
JournalInternational Journal of Orthopaedic and Trauma Nursing
DescriptionThis is an accepted manuscript of an article published by Elsevier in International Journal of Orthopaedic and Trauma Nursing on 07/11/2020, available online: https://doi.org/10.1016/j.ijotn.2020.100831 The accepted version of the publication may differ from the final published version.
Except where otherwise noted, this item's license is described as https://creativecommons.org/licenses/by-nc-nd/4.0/