The voices of people with an intellectual disability and a carer about orthopaedic and trauma hospital care in the UK: An interpretative phenomenological study
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Abstract
Introduction People with intellectual disabilities (PWID) have a greater prevalence ofmusculoskeletal conditions and injuries than the general population. Orthopaedic andtrauma hospital care has not been investigated with this group who seldom have theirvoices heard or their experiences valued and interpreted. Aim To understand theorthopaedic and trauma hospital experiences from the perspective of PWID. Methods A qualitative approach, focusing on peoples’ lived experiences, was utilised. Apurposive sample of five participants was recruited and one-to-one, semi-structuredinterviews were undertaken. Analysis of the interviews employed an interpretative phenomenological analytical framework. Findings There were communicationchallenges, a lack of person-centred care, issues with pain management, a lack ofconfidence in hospital care, valuable support and expertise of carers, incompetence ofhospital staff and isolation and loneliness. Discussion and conclusions There weresignificant shortcomings as PWID and a carer perceived they were unsupported andreceived poor care. Recommendations for practice: Person-centred care is neededalong with specific education and training, including close liaison with the experts byexperience – PWID, their carers as well as the specialists in intellectual disability.Citation
Drozd, M., Chadwick, D. and Jester, R. (2020) The voices of people with an intellectual disability and a carer about orthopaedic and trauma hospital care in the UK: An interpretative phenomenological study, International Journal of Orthopaedic and Trauma Nursing. https://doi.org/10.1016/j.ijotn.2020.100831Publisher
ElsevierJournal
International Journal of Orthopaedic and Trauma NursingType
Journal articleLanguage
enDescription
This is an accepted manuscript of an article published by Elsevier in International Journal of Orthopaedic and Trauma Nursing on 07/11/2020, available online: https://doi.org/10.1016/j.ijotn.2020.100831 The accepted version of the publication may differ from the final published version.ISSN
1878-1241ae974a485f413a2113503eed53cd6c53
10.1016/j.ijotn.2020.100831
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Except where otherwise noted, this item's license is described as https://creativecommons.org/licenses/by-nc-nd/4.0/