A cross-case comparison of the trauma and orthopaedic hospital experiences of adults with intellectual disabilities using interpretative phenomenological analysis
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AbstractAim: To present the cross-case comparison component of a qualitative study exploring and describing the experiences of adults with an intellectual disability who have received trauma and orthopaedic hospital care for musculoskeletal conditions or injuries in the United Kingdom. Design A qualitative, exploratory study was conducted using 1:1 semi-structured interviews to describe the lived experiences of trauma and orthopaedic hospital care from the perspectives of people with intellectual disabilities and a carer of a person with profound and multiple intellectual disabilities. The data was analysed using interpretative phenomenological analysis. The Standards for Reporting Qualitative Research guidelines were applied. Results: There were common and interconnected experiences across the five participants: Communication challenges; lack of person-centred care; issues related to pain management; lack of confidence in hospital care; the valuable support and expertise of carers; incompetence of hospital staff and isolation and loneliness. Discussion: Although adults with intellectual disabilities are seldom included as participants in health research studies, their unique experiences provided valuable insights and informs the evidence base in relation to trauma and orthopaedic hospital care. Conclusions: This study revealed poor quality and unsafe trauma and orthopaedic hospital experiences as described by people with intellectual disabilities and a carer. Health care providers, commissioners and staff require urgent education and training to ensure that a person-centred approach, incorporating reasonable and achievable adjustments, is implemented to meet the currently unmet needs of adults with intellectual disabilities.
CitationDrozd, M., Chadwick, D. and Jester, R. (in press) A cross-case comparison of the trauma and orthopaedic hospital experiences of adults with intellectual disabilities using interpretative phenomenological analysis, Nursing Open.
DescriptionThis is an accepted manuscript of an article published by Wiley in Nursing Open (in press). The accepted version of the publication may differ from the final published version
Except where otherwise noted, this item's license is described as https://creativecommons.org/licenses/by/4.0/