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dc.contributor.authorTilly, Liz
dc.date.accessioned2020-08-28T13:38:28Z
dc.date.available2020-08-28T13:38:28Z
dc.date.issued2020-10-01
dc.identifier.citationTilly, L. (2020) Exploring ethical issues arising from ten years of inclusive research with people with a learning disability, Sentio, 2, pp. 26-33.en
dc.identifier.issn2632-2455en
dc.identifier.urihttp://hdl.handle.net/2436/623544
dc.description© 2020 The Authors. Published by South East Network. This is an open access article available under a Creative Commons licence. The published version can be accessed at the following link on the publisher’s website: https://sentiojournal.uk/wp-content/uploads/2020/10/Sentio_Issue_2_Articles_04.pdfen
dc.description.abstractInclusive research enables people with a learning disability, with support, to take a lead role at all stages of the research, including the design, process and dissemination, rather than just contributing to the data collection (Walmsley and Johnson, 2003). In 2010 a short-term research project enabled a group of people with a learning disability to ‘research their own lives’. An unexpected outcome was that the members greatly valued the opportunity to tell their stories and wanted to continue. Ten years later the group continues to research issues affecting them and their peers from a disability rights (United Nations General Assembly, 2006) and social model of disability perspective. This article is based on the personal observations and reflections of their non-disabled group facilitator and fellow researcher, regarding a range of ethical issues and dilemmas raised by this inclusive research approach. They include anonymity and confidentiality, the need for flexible roles of the group facilitator, including advocate and supporter, and the extent that this conflicts with the role of co-researcher. Power, ownership and control of the research agenda are also discussed.en
dc.formatapplication/pdfen
dc.languageEnglish
dc.language.isoenen
dc.publisherSouth-East Network for the Social Sciencesen
dc.relation.urlhttps://sentiojournal.uk/wp-content/uploads/2020/10/Sentio_Issue_2_Articles_04.pdfen
dc.subjectinclusive researchen
dc.subjectlearning disabilityen
dc.subjectpartnershipen
dc.subjectethicsen
dc.subjectcollaborationen
dc.titleExploring ethical issues arising from ten years of inclusive research with people with a learning disabilityen
dc.typeJournal articleen
dc.identifier.journalSentioen
dc.date.updated2020-08-24T16:46:09Z
dc.date.accepted2020-07-01
rioxxterms.funderUniversity of Wolverhamptonen
rioxxterms.identifier.projectUOW28082020LTen
rioxxterms.versionVoRen
rioxxterms.licenseref.urihttps://creativecommons.org/licenses/by/4.0/en
rioxxterms.licenseref.startdate2020-10-21en
dc.source.volume2
dc.source.beginpage26
dc.source.endpage33
refterms.dateFCD2020-08-28T13:37:49Z
refterms.versionFCDVoR


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