Caregiver wellbeing and the role of resilience in seeking support when caring for an individual with dementia

Abstract

Background & aims: To provide appropriate and suitable support to caregivers of people with dementia, it is important to explore the risk and protective factors related to their psychological wellbeing. The aim of this thesis, is firstly, to highlight lived experiences of dementia caregiver’s; secondly, to explore the role of psychological resilience in their ability to adapt and maintain their role; and finally, to identify and examine their perspectives of current support services in meeting their needs. Method: A sequential explanatory mixed method design was used. In Phase I participants completed a postal survey (n=45), including demographic information, a healthrelated quality of life measure and a psychological resilience scale. Results were used to inform and direct Phase II, in which semi-structured interviews were conducted (n=11), transcribed and analysed using thematic analyses. Results: The quantitative findings indicated that participants with higher mental health outcomes and high psychological resilience were more likely to access support services. Physical wellbeing had a greater association with factors related to providing care. Seven main themes were identified in the qualitative analysis, the majority relating strongly to a high degree of restricted opportunities and encroaching responsibilities. The findings indicate that caregivers are required to be flexible and adapt to their individual circumstances, within an ever-evolving situation. Implications: The results of this study suggest that identifying those with low levels of psychological resilience and wellbeing may be useful in identifying those in greater need of support. Recommendations for potential service developments are discussed, as well as the implications for Counselling Psychology practice.