What is needed to obtain informed consent and monitor capacity for a successful study involving people with mild dementia? Our experience in a multi-centre study
Authors
Lim, JenniferAlmeida, Rosa
Holthoff-Detto, Vjera
Ludden, Geke
Smith, Tina
Niedderer, Kristina
the MinD consortium
Issue Date
2019-11-13
Metadata
Show full item recordAbstract
Strategies on informed consent process and capacity monitoring for mild dementia research are at developing state. We reflected on our experience and found that the successful collection of informed consent and full participation of PwD required the involvement of familiar healthcare professionals/care workers/staff at the recruitment and data collection stages and this needs to occur in an active support environment. Time is another important factor affecting the success of the study.Citation
Lim, J., Rosa, A., Holthoff-Detto, V., Ludden, G., Smith, T., Niedderer, K. and MinD consortium (2019) What is needed to obtain informed consent and monitor capacity for a successful study involving People with Mild Dementia? Our experience in a multi-centre study, In Niedderer, K., Ludden, G.D.S., Cain, R. and Wölfel, C. (eds.) Designing with and for people with dementia: wellbeing, empowerment and happiness. Dresden : TUDpress, 2019, pp. 139-150.Publisher
TU, DresdenAdditional Links
https://tud.qucosa.de/landing-page/https%3A%2F%2Ftud.qucosa.de%2Fapi%2Fqucosa%253A36687%2Fmets%2F/Type
Conference contributionLanguage
enDescription
This chapter originally appeared as a paper at the International MinD Conference 2019 http://designingfordementia.eu/news/mind-events/mind-conference-2019ISBN
9783959081832Collections
Except where otherwise noted, this item's license is described as https://creativecommons.org/licenses/by-nc-nd/4.0/