What is needed to obtain informed consent and monitor capacity for a successful study involving people with mild dementia? Our experience in a multi-centre study
the MinD consortium
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AbstractStrategies on informed consent process and capacity monitoring for mild dementia research are at developing state. We reflected on our experience and found that the successful collection of informed consent and full participation of PwD required the involvement of familiar healthcare professionals/care workers/staff at the recruitment and data collection stages and this needs to occur in an active support environment. Time is another important factor affecting the success of the study.
CitationLim, J., Rosa, A., Holthoff-Detto, V., Ludden, G., Smith, T., Niedderer, K. and MinD consortium (2019) What is needed to obtain informed consent and monitor capacity for a successful study involving People with Mild Dementia? Our experience in a multi-centre study, In Niedderer, K., Ludden, G.D.S., Cain, R. and Wölfel, C. (eds.) Designing with and for people with dementia: wellbeing, empowerment and happiness. Dresden : TUDpress, 2019, pp. 139-150.
DescriptionThis chapter originally appeared as a paper at the International MinD Conference 2019 http://designingfordementia.eu/news/mind-events/mind-conference-2019
Except where otherwise noted, this item's license is described as https://creativecommons.org/licenses/by-nc-nd/4.0/