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dc.contributor.authorGarcía Iriarte, Edurne
dc.contributor.authorO'Brien, Patricia
dc.contributor.authorChadwick, Darren
dc.date.accessioned2018-07-04T08:09:33Z
dc.date.available2018-07-04T08:09:33Z
dc.date.issued2014-06
dc.identifier.citationInvolving People With Intellectual Disabilities Within Research Teams: Lessons Learned from an Irish Experience 2014, 11 (2):149 Journal of Policy and Practice in Intellectual Disabilities
dc.identifier.issn17411122
dc.identifier.doi10.1111/jppi.12081
dc.identifier.urihttp://hdl.handle.net/2436/621424
dc.description.abstractA growing body of literature has shed light into the process of conducting research with people with intellectual disabilities (ID). However, there is limited research on the feasibility of conducting research projects including various groups of people with ID, their supporters, and researchers. This paper reviews three studies conducted with these three groups of people in light of their feasibility, the knowledge generated, and their impact on individual and social change. This study used a reflective analysis focused on the main findings from the three studies, focus groups with people with ID and supporters who conducted the research, and interviews with people to whom the findings were disseminated. The analysis suggested that a team approach including active supporters and experienced researchers was critical to their feasibility. The studies generated knowledge particularly on the perspectives of people with ID on their rights. As a result of participation in these studies, some changes at the individual and social levels occurred, but these were relatively limited. The implications of this analysis for future research are discussed in the context of the implementation of the United Nations Convention on the Rights of Persons with Disabilities.
dc.description.sponsorshipMarie Curie Actions
dc.formatapplication/PDF
dc.language.isoen
dc.publisherWiley
dc.relation.urlhttp://doi.wiley.com/10.1111/jppi.12081
dc.subjectintellectual disabilities
dc.subjectresearch
dc.subjectfeasibility
dc.subjectknowledge
dc.subjectchange
dc.subjectinclusive research
dc.titleInvolving People With Intellectual Disabilities Within Research Teams: Lessons Learned from an Irish Experience
dc.typeJournal article
dc.identifier.journalJournal of Policy and Practice in Intellectual Disabilities
dc.contributor.institutionNational Institute for Intellectual Disability; Trinity College Dublin; Dublin Ireland
dc.contributor.institutionCentre for Developmental Disabilities Studies; University of Sydney; Sydney New South Wales Australia
dc.contributor.institutionUniversity of Wolverhampton; Wolverhampton England
dc.source.volume11
dc.source.issue2
dc.source.beginpage149
dc.source.endpage157
refterms.dateFOA2018-07-18T14:27:32Z
html.description.abstractA growing body of literature has shed light into the process of conducting research with people with intellectual disabilities (ID). However, there is limited research on the feasibility of conducting research projects including various groups of people with ID, their supporters, and researchers. This paper reviews three studies conducted with these three groups of people in light of their feasibility, the knowledge generated, and their impact on individual and social change. This study used a reflective analysis focused on the main findings from the three studies, focus groups with people with ID and supporters who conducted the research, and interviews with people to whom the findings were disseminated. The analysis suggested that a team approach including active supporters and experienced researchers was critical to their feasibility. The studies generated knowledge particularly on the perspectives of people with ID on their rights. As a result of participation in these studies, some changes at the individual and social levels occurred, but these were relatively limited. The implications of this analysis for future research are discussed in the context of the implementation of the United Nations Convention on the Rights of Persons with Disabilities.


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