Can I help you? Information sharing in online discussion forums by people living with a long-term condition.
Cast your vote
You can rate an item by clicking the amount of stars they wish to award to this item.
When enough users have cast their vote on this item, the average rating will also be shown.
Your vote was cast
Thank you for your feedback
Thank you for your feedback
MetadataShow full item record
AbstractBackground Peer-to-peer health care is increasing, especially amongst people living with a long-term condition. How information is shared is, however, sometimes of concern to health care professionals. Objective This study explored what information is being shared on health-related discussion boards and identified the approaches people used to signpost their peers to information. Methods This study was conducted using a qualitative content analysis methodology to explore information shared on discussion boards for people living with diabetes. Whilst there is debate about the best ethical lens to view research carried out on data posted on online discussion boards, the researchers chose to adopt the stance of treating this type of information as “personal health text”, a specific type of research data in its own right. Results Qualitative content analysis and basic descriptive statistics were used to analyse the selected posts. Two major themes were identified: ‘Information Sharing from Experience’ and ‘Signposting Other Sources of Information’. Conclusions People were actively engaging in information sharing in online discussion forums, mainly through direct signposting. The quality of the information shared was important, with reasons for recommendations being given. Much of the information sharing was based on experience, which also brought in information from external sources such as health care professionals and other acknowledged experts in the field. With the rise in peer-to-peer support networks, the nature of health knowledge and expertise needs to be redefined. People online are combining external information with their own personal experiences and sharing that for others to take and develop as they wish.
CitationBond CS, Ahmed OH. Can I help you? Information sharing in online discussion forums by people living with a long- term health condition. J Innov Health Inform. 2016;23(3):620–626.
JournalJournal of innovation in health informatics, volume 23 issue 3 on page 620
The following license files are associated with this item:
Except where otherwise noted, this item's license is described as Archived with thanks to Journal of innovation in health informatics
- The conceptual and practical ethical dilemmas of using health discussion board posts as research data.
- Authors: Bond CS, Ahmed OH, Hind M, Thomas B, Hewitt-Taylor J
- Issue date: 2013 Jun 7
- Sharing and Empathy in Digital Spaces: Qualitative Study of Online Health Forums for Breast Cancer and Motor Neuron Disease (Amyotrophic Lateral Sclerosis).
- Authors: Hargreaves S, Bath PA, Duffin S, Ellis J
- Issue date: 2018 Jun 14
- What e-patients want from the doctor-patient relationship: content analysis of posts on discussion boards.
- Authors: Hewitt-Taylor J, Bond CS
- Issue date: 2012 Nov 8
- Peer Communication in Online Mental Health Forums for Young People: Directional and Nondirectional Support.
- Authors: Prescott J, Hanley T, Ujhelyi K
- Issue date: 2017 Aug 2
- Information sought, information shared: exploring performance and image enhancing drug user-facilitated harm reduction information in online forums.
- Authors: Tighe B, Dunn M, McKay FH, Piatkowski T
- Issue date: 2017 Jul 21