Balancing hope and despair at the end of life: The contribution of organ and tissue donation.
Cast your vote
You can rate an item by clicking the amount of stars they wish to award to this item.
When enough users have cast their vote on this item, the average rating will also be shown.
Your vote was cast
Thank you for your feedback
Thank you for your feedback
MetadataShow full item record
AbstractPURPOSE: Concern for the grieving family can moderate the intentions of critical care staff to advocate deceased organ and tissue donation. Conversely, benevolent actions may provoke distress through missed opportunities to save or transform lives. This article provides insight into the perceived benefits of organ and tissue donation for grieving families who experienced end-of-life care in the intensive care unit. METHODS: Data were collected via semistructured, face-to-face or telephone interviews with 43 participants from 31 donor families. Audio recordings were transcribed verbatim and subjected to qualitative content analysis. RESULTS: The study findings affirmed the importance of person-centered end-of-life care. Donor families shared examples of good-quality care and communication that contained the hallmarks of compassion, respect, dignity, and choice. We uncovered a trajectory of hope and despair in which the option of organ and tissue donation appeared to give meaning to the life and death of the deceased person and was comforting to some families in their bereavement. CONCLUSIONS: Our study findings underlined the significance of donation decision making for grieving families. Organ and tissue donation has the potential to balance hope and despair at the end of life when the wishes of the dying, deceased, and bereaved are fulfilled.
CitationBalancing hope and despair at the end of life: The contribution of organ and tissue donation. 2016, 32:73-8 J Crit Care
JournalJournal of critical care
SponsorsBritish Department of Health
- Family bereavement: A case study of controlled organ donation after circulatory death.
- Authors: Walker W, Sque M
- Issue date: 2019 Jul
- Organ donation: key factors influencing families' decision-making.
- Authors: Sque M, Long T, Payne S
- Issue date: 2005 Mar
- Bereaved donor families' experiences of organ and tissue donation, and perceived influences on their decision making.
- Authors: Sque M, Walker W, Long-Sutehall T, Morgan M, Randhawa G, Rodney A
- Issue date: 2018 Jun
- Request for organ donation without donor registration: a qualitative study of the perspectives of bereaved relatives.
- Authors: de Groot J, van Hoek M, Hoedemaekers C, Hoitsma A, Schilderman H, Smeets W, Vernooij-Dassen M, van Leeuwen E
- Issue date: 2016 Jul 11
- Understanding family involvement in body donation in Hong Kong: A qualitative study of registered donors and bereaved family members.
- Authors: Chan WCH, Chan SO, Wong ALY, Ng PKL
- Issue date: 2020 Jan