Peer support for CKD patients and carers: overcoming barriers and facilitating access
Cast your vote
You can rate an item by clicking the amount of stars they wish to award to this item.
When enough users have cast their vote on this item, the average rating will also be shown.
Your vote was cast
Thank you for your feedback
Thank you for your feedback
MetadataShow full item record
AbstractPeer support is valued by its users. Nevertheless, there is initial low take-up of formal peer support programmes among patients with chronic kidney disease (CKD), with fewer patients participating than expressing an interest. There is little evidence on reasons for low participation levels. Few studies have examined the perspectives of carers. Objective: To explore with CKD patients and carers their needs, wants and expectations from formal peer support and examine how barriers to participation may be overcome. Methods: Qualitative interviews with a sample of 26 CKD stage five patients and carers. Principles of Grounded Theory were applied to data coding and analysis. Setting: Six NHS Hospital Trusts. Results: Whilst informal peer support might occur naturally and is welcomed, a range of emotional and practical barriers inhibit take‐up of more formalized support. Receptivity varies across time and the disease trajectory and is associated with emotional readiness; patients and carers needing to overcome complex psychological hurdles such as acknowledging support needs. Practical barriers include limited understanding of peer support. An attractive peer relationship is felt to involve reciprocity based on sharing experiences and both giving and receiving support. Establishing rapport is linked with development of reciprocity. Conclusions: There is potential to facilitate active uptake of formal peer support by addressing the identified barriers. Our study suggests several facilitation methods, brought together in a conceptual model, including clinician promotion of peer support as an intervention suitable for anyone with CKD and their carers, and opportunity for choice of peer supporter.
CitationTaylor, F., Gutteridge, R., Willis, C. (2016) 'Peer support for CKD patients and carers: overcoming barriers and facilitating access' Health Expectations, 19 (3) pp. 617-30
The following licence applies to the copyright and re-use of this item:
- Development of a psychosocial intervention to support informal caregivers of people with end-stage kidney disease receiving haemodialysis.
- Authors: Matthews M, Reid J, McKeaveney C, Mullan R, Bolton S, Hill C, Noble H
- Issue date: 2020 Oct 1
- A narrative review of peer support barriers and facilitators in kidney care.
- Authors: Trasolini A, Wood E, Thomas N
- Issue date: 2021 Mar
- Mental health carers' experiences of an Australian Carer Peer Support program: Tailoring supports to carers' needs.
- Authors: Visa B, Harvey C
- Issue date: 2019 May
- The impact of befriending and peer support on family carers of people living with dementia: A mixed methods study.
- Authors: Smith R, Drennan V, Mackenzie A, Greenwood N
- Issue date: 2018 May - Jun
- Barriers and facilitators to the access to and use of formal dementia care: findings of a focus group study with people with dementia, informal carers and health and social care professionals in eight European countries.
- Authors: Stephan A, Bieber A, Hopper L, Joyce R, Irving K, Zanetti O, Portolani E, Kerpershoek L, Verhey F, de Vugt M, Wolfs C, Eriksen S, Røsvik J, Marques MJ, Gonçalves-Pereira M, Sjölund BM, Jelley H, Woods B, Meyer G, Actifcare Consortium.
- Issue date: 2018 Jun 4