Balancing hope and despair at the end of life: The contribution of organ and tissue donation.

2.50
Hdl Handle:
http://hdl.handle.net/2436/620198
Title:
Balancing hope and despair at the end of life: The contribution of organ and tissue donation.
Authors:
Walker, Wendy; Sque, Magi
Abstract:
PURPOSE: Concern for the grieving family can moderate the intentions of critical care staff to advocate deceased organ and tissue donation. Conversely, benevolent actions may provoke distress through missed opportunities to save or transform lives. This article provides insight into the perceived benefits of organ and tissue donation for grieving families who experienced end-of-life care in the intensive care unit. METHODS: Data were collected via semistructured, face-to-face or telephone interviews with 43 participants from 31 donor families. Audio recordings were transcribed verbatim and subjected to qualitative content analysis. RESULTS: The study findings affirmed the importance of person-centered end-of-life care. Donor families shared examples of good-quality care and communication that contained the hallmarks of compassion, respect, dignity, and choice. We uncovered a trajectory of hope and despair in which the option of organ and tissue donation appeared to give meaning to the life and death of the deceased person and was comforting to some families in their bereavement. CONCLUSIONS: Our study findings underlined the significance of donation decision making for grieving families. Organ and tissue donation has the potential to balance hope and despair at the end of life when the wishes of the dying, deceased, and bereaved are fulfilled.
Citation:
Balancing hope and despair at the end of life: The contribution of organ and tissue donation. 2016, 32:73-8 J Crit Care
Publisher:
Elsevier
Journal:
Journal of critical care
Issue Date:
Apr-2016
URI:
http://hdl.handle.net/2436/620198
DOI:
10.1016/j.jcrc.2015.11.026
PubMed ID:
26826752
Additional Links:
http://www.sciencedirect.com/science/article/pii/S0883944115006036
Type:
Article
Language:
en
ISSN:
1557-8615
Sponsors:
British Department of Health
Appears in Collections:
FEHW

Full metadata record

DC FieldValue Language
dc.contributor.authorWalker, Wendyen
dc.contributor.authorSque, Magien
dc.date.accessioned2016-10-11T13:25:32Z-
dc.date.available2016-10-11T13:25:32Z-
dc.date.issued2016-04-
dc.identifier.citationBalancing hope and despair at the end of life: The contribution of organ and tissue donation. 2016, 32:73-8 J Crit Careen
dc.identifier.issn1557-8615-
dc.identifier.pmid26826752-
dc.identifier.doi10.1016/j.jcrc.2015.11.026-
dc.identifier.urihttp://hdl.handle.net/2436/620198-
dc.description.abstractPURPOSE: Concern for the grieving family can moderate the intentions of critical care staff to advocate deceased organ and tissue donation. Conversely, benevolent actions may provoke distress through missed opportunities to save or transform lives. This article provides insight into the perceived benefits of organ and tissue donation for grieving families who experienced end-of-life care in the intensive care unit. METHODS: Data were collected via semistructured, face-to-face or telephone interviews with 43 participants from 31 donor families. Audio recordings were transcribed verbatim and subjected to qualitative content analysis. RESULTS: The study findings affirmed the importance of person-centered end-of-life care. Donor families shared examples of good-quality care and communication that contained the hallmarks of compassion, respect, dignity, and choice. We uncovered a trajectory of hope and despair in which the option of organ and tissue donation appeared to give meaning to the life and death of the deceased person and was comforting to some families in their bereavement. CONCLUSIONS: Our study findings underlined the significance of donation decision making for grieving families. Organ and tissue donation has the potential to balance hope and despair at the end of life when the wishes of the dying, deceased, and bereaved are fulfilled.en
dc.description.sponsorshipBritish Department of Healthen
dc.language.isoenen
dc.publisherElsevieren
dc.relation.urlhttp://www.sciencedirect.com/science/article/pii/S0883944115006036-
dc.rightsArchived with thanks to Journal of critical careen
dc.subjectBereavementen
dc.subjectFamilyen
dc.subjectgriefen
dc.subjectSudden deathen
dc.subjectOrgan donationen
dc.subjectQualitative researchen
dc.titleBalancing hope and despair at the end of life: The contribution of organ and tissue donation.en
dc.typeArticleen
dc.identifier.journalJournal of critical careen

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